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Mom Expects To Bury Son As Soon As He's Born. When He Survives, Look Closely At His Hair

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Mom Expects To Bury Son As Soon As He's Born. When He Survives, Look Closely At His Hair

By Timfly

Bentley was born with encephalocele, a fatal birth defect that caused his brain to protrude outside of a hole in his skull. There was just one thing: Bentley miraculously survived. Expected to only live a few hours, doctors were not optimistic; they told the couple that there wasn’t much they could do but make sure he was comfortable until he died. But the little fighter kept on going, month after month. Doctors insisted Bentley was not “compatible with life,” but Sierra had hope.

The couple discovered Dr. John Meara at Boston Children’s Hospital. Dr. Meara told them what other doctors couldn’t: Bentley had hope. Dr. Meara printed out a 3D model of Bentley’s brain. He came up with a plan to slice Bentley’s skull open like flower petals to create room for his brain. Then he would use two segmented pieces of his skull to create a “criss-cross” at the top of his head. At almost 7 months old, Bentley went through with the surgery, and he survived.

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